Well, I took Landon to our family doctor. He was familiar with strabismus (lazy eye) but not nystagmus, so he referred me to a pediatric ophthalmologist. Cue Dr. Brooks. I took Landon in to see Dr. Brooks right after Christmas that year and he saw a fairly typical case of idiopathic congenital nystagmus (idiopathic means that there is no know cause for it). He did not see any signs of neurological abnormalities and then checked, as much as he could in such a young patient, for actual vision problems. At that time it would just be a waiting game. He could end up with serious vision problems or he could end up seeing well in spite of his eye movement.
Landon had 2 follow-up appointments last year and one just this week, and we have had better and better news as he's grown older. The nystagmus is still there, and will be there all his life, but it has slowed down significantly. After several tests, it looks like he may only be slightly nearsighted, but that's to be expected. Nearsightedness runs in the family. We will still need to wait and see because we'll find out how much he really sees once he can communicate better, but right now he's only a month behind his sister when it comes to developmental milestones, so we are relieved and hopeful.
What a difference a year makes, indeed.
2 comments:
My 16 month old daughter has had a nystagmus for at least the past few months, and possibly since birth. It seemed to be affecting her walking, so I got diligent about finding a solution. I found out that it could be related to food allergies, so I kept an eye for changes. I immediately noticed that hers was worse after eating potatoes. I eventually cut out all nightshade vegetables (tomato, potato, eggplant, bell peppers, paprika, etc.) and hers is gone! It may be worth trying for anyone with Nystagmus.
Thanks for your suggestion, Kristin! I haven't noticed a link between Landon's nystagmus and certain foods, but I will certainly keep an eye on that. His seems to be worse in the morning when he wakes up and at night (or right before a nap) when he's tired.
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